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    • Pediatric Care
    • Renown Health Foundation

    Why I Give: Sarah’s Story

    As an avid soccer player, Sarah saw her fair share of doctors growing up. However, it wasn’t until she was diagnosed with celiac disease, an autoimmune disease affecting how the body ingests gluten, that she became passionate about healthcare. “I couldn’t figure out what was going on,” Sarah said. “I was getting sick, and my symptoms were getting worse.” Thankfully, after seeing a handful of doctors, she was on the path to recovery.  “I remember being so relieved, and still am! Now I can focus on getting better,” said Sarah. The most important change people make after being diagnosed with celiac disease is the shift to a gluten-free diet. For many, Sarah included, living gluten-free is a lifestyle change. Thankfully, Sarah sees significant improvements in her health after adjusting her diet. “No one should just accept their symptoms as part of life,” said Sarah. Her increased awareness of health and nutrition motivated Sarah to study biology at the University of Nevada, Reno (UNR). “I want to be a pediatrician so I can help patients, especially kids, figure out treatment plans.” said Sarah who credits her experience living with celiac disease as her inspiration. Dancing for Kids’ Health Currently a senior at UNR, Sarah is a member of Phi Delta Epsilon, a co-ed international medical fraternity. Together with her classmates, she is bringing new energy and ideas to philanthropy. Sarah and the members of Phi Delta Epsilon are doing things differently and in many ways redefining what it means to give. This year, they are on a mission to raise funds for kids’ health at Renown Children’s Hospital. And they are doing this by dancing. The UNR Dance Marathon is part of the Miracle Network Dance Marathon, a student-led, year-round philanthropic movement that unites students across the United States and Canada. Collectively, they raise critical funds for Children's Miracle Network Hospitals. And Renown Children’s Hospital is our northern Nevada CMN partner hospital. Since 1991, over 400 college campuses and thousands of students have raised $300 million for kids. Sarah is the executive director of UNR’s chapter. “So far this year we’ve already raised $10,000 for Renown," said Sarah. Most of the fundraising happens on the day of the dance marathon. But throughout the school year, students hold mini fundraisers on campus and in the community. One hundred percent of the funds raised stay local, impacting Renown’s youngest patients. For every dollar donated, 18% helps provide charitable care, 15% goes to life-saving equipment, 12% supports medical research and 55% provides education, patient services and advancement services. “It's inspiring that we banded together to help kids in our community,” said Sarah. Last year they raised over $18,000. They are hoping to exceed that number at this year’s dance marathon in April.

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    • Pediatric Care
    • Renown Health Foundation
    • Kid's Health
    • Patient Story

    Jakob’s Journey at Renown Children’s Hospital

    In August 2016, six-year-old Jakob was admitted to Renown Children's Hospital with what seemed like a common ear infection. Jakob's condition quickly progressed, and he started experiencing neurological symptoms such as difficulty speaking and a full-body shutdown. Doctors, neurologists and specialists from Renown worked with doctors from Stanford, where he was ultimately diagnosed with Bickerstaff brainstem encephalitis (BBE). BBE is a rare, autoimmune response that attacks the nerves in the body due to an acute illness such as a cold, flu or, in Jakob's case, an ear infection. Jakob could not breathe or eat and experienced paralysis on the side of his face, throat, stomach, bowels, lungs and legs. In addition, he started to rapidly lose weight as well as body function. Jakob lost half his body weight which resulted in the need for a Gastrostomy tube. This device is placed surgically and gives direct access to the stomach to give the child the nutrition needed. He also needed occupational therapy, and after three and a half months of ICU respiratory therapy, surgeries and treatments, he was released home to regain his strength. Forever Grateful Anica, Jakob's mom, said, "If it were not for the quick response and unconditional support and compassion from the team at Renown, Jakob would not be here today." Jakob's family is forever grateful to the staff, community and expertise at Renown for their unwavering commitment to their son and family during their most trying time in life. "When I met Jakob on the first day of his illness, so much was unknown. My team and I were worried, as his symptoms were very unusual. His rapid deterioration, after being a perfectly healthy child, was clearly terrifying for his parents. Handing over a child's care to a team of strangers is one of the scariest things that can happen to parents,” said Dr. Kris Deeter, Physician in Chief at Renown Children’s Hospital. “However, Anica and Jeremiah were also very clear that they did not want Jakob transferred somewhere else. So, we used all our resources to care for him, arrive at a diagnosis, and start aggressive therapies. They listened to every word we said, educated themselves, and became partners in Jakob's care. We all became part of Team Jakob, and soon, he proved to us just how strong he was." Today, Jakob is 13 years old and thriving in every aspect of his life. He is currently on the honor roll in school and finds joy in his newfound passion for the violin. He loves spending his free time learning about mixing music, making new friends and traveling to different parts of the country. This summer, he will travel to Europe to explore his passion for culture. The family says, "We owe it all to the family and staff at Renown."

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    • Pediatric Care
    • Renown Health Foundation

    Renown Health Foundation Shines Bright

    Renown Health Foundation and local community members raised over $1,000,000 at a charity concert with The Beach Boys and special guest NFL legend Steve Young, on Sunday, June 5, at Montreux Golf and Country Club. The event benefits the construction of Sophie’s Place, a new dedicated music therapy room coming to Renown Children’s Hospital. Over 500 donors attended the inaugural event hosted by radio personality Wink Martindale. The Beach Boys front man Mike Love, a Nevada resident, generously auctioned off two once-in-a-lifetime, private concerts bringing in $300,000. Steve Young auctioned off a Monday Night Football package and ZLINE Kitchen and Bath auctioned off a kitchen remodel. The proceeds raised will be transformative for Sophie’s Place and will impact children in our community for years to come. “I’m thankful to Renown and other children’s hospitals that are dedicating space, precious space, for Sophie’s Place,” says Steve Young, founder of Forever Young Foundation and co-founder of Sophie’s Place. View photos from the event here.   What is Sophie’s Place? Sophie’s Place is a dedicated music therapy room in children’s hospitals across the country. Founded by the Forever Young Foundation and former San Francisco 49'ers quarterback, Steve Young, they provide a comprehensive music and healing arts program. Established in loving memory of musician Sophie Barton, the first Sophie’s Place opened in 2013 at Primary Children’s Hospital in Salt Lake City, Utah. Additional locations include Sutter Children’s Center in Sacramento, CA., Cardon Children’s Medical Center in Mesa, AZ., Lucille Packard Children’s Hospital in Palo Alto, CA., and Brenner Children's Hospital in Winston-Salem, NC. Renown Children’s Hospital will be the next location to break ground and will provide our youngest patients with a state-of-the-art music room. It will be the first of its kind in our community. “Sophie’s Place is a wonderful addition to what a hospital has to offer,” says Dr. Max Coppes, Pediatrics Chair, UNRSOM. Where will Sophie’s Place be Located? Sophie’s Place at Renown Children’s Hospital will be located on the ground floor of the Sierra Tower, next to The John & Sue Dermody Children’s Healing Garden. The family-centered space is designed for children to enjoy the healing aspects of music and encourage creativity and expression during their stay. “We really wanted kids to feel like they’re not in the hospital. It’s a place where they can escape,” says Barb Young, Founder of Forever Young Foundation and Co-founder of Sophie’s Place. The room includes a performance space, recording studio, musical instruments, editing software and an art and play area. “When you walk into a Sophie’s Place, you really feel like you’ve left the hospital and walked into a cool coffee shop,” says Sterling Tanner, President, Executive Director, Forever Young Foundation. How You Can Help Make a Difference Renown Health is focused on being the destination for all your family’s health and healthcare needs. As a not-for-profit health system, Renown relies heavily on community funding. If you are interested in supporting Sophie’s Place at Renown Children’s Hospital, please consider giving to Renown Health Foundation. Make a gift at renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., 02, Reno, NV 89502

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    • Cancer Care
    • Pediatric Care
    • Renown Health Foundation

    Young and Resilient Fighters: Advanced Childhood Cancer Treatment Close to Home

    Austin was five years old when he was diagnosed with leukemia. A fever and pale looking skin prompted his mom, Brenda, to bring him into his primary care physician in Carson City. After doing some blood work, the fight to beat Austin's cancer began. The initial shock of learning your child has cancer is traumatic and can feel like a whirlwind. Then the questions begin – will my child survive, what happens next, how will we tell his siblings, will we have to travel out of state for quality care? The list of questions feel endless. While grappling with the news, Brenda brought Austin to Renown Children’s Hospital for an additional check-up. This weeklong hospitalization started with a series of tests to confirm Austin’s diagnosis and ultimately it led to treatment for the leukemia. Dr. Jacob Zucker, a pediatric oncologist at Renown Children's Hospital, was with Austin every step of the way, even meeting him in the parking garage on his first day of treatment. Brenda is eternally grateful that Dr. Zucker was on staff at Renown Children's Hospital, which allowed them to keep Austin's care in Reno. The alternative was to travel out of state for care. "Dr. Zucker was the best thing to ever happen to our family. I consider him a part of our family now," said Brenda. "His kindness and knowledge gave us faith in him." Treatment for Childhood Leukemia Austin’s treatment was broken into a number of stages with the first eight months of therapy being the hardest. He would receive almost weekly therapy at Renown Children’s Infusion Center as well as frequent spinal taps with chemotherapy. After eight months, and for the next three years, Austin would receive a maintenance phase therapy. This meant oral chemotherapy every day, IV chemotherapy once a month, spinal chemotherapy every three months and steroids for the first five days of every month. After more than four years of fighting cancer, Austin, now 10, is free of any disease. Currently, he has blood work every two months to ensure he is on the right track. Seeking Advice from Children’s Oncology Groups Throughout Austin's treatment, Brenda regularly sought advice from Children's Oncology Group (COG) members. COG is the world’s largest organization devoted exclusively to childhood cancer. Renown Children's was not a member of COG at the time of Austin's treatment -- with the closest facilities located in the Bay Area and Salt Lake City – but it is /now. “When faced with pediatric cancer, the last thing parents should worry about is traveling great lengths to receive the best in cancer care," said Larry Duncan, Vice President of Pediatrics and Surgery and Administrator at Renown Children's Hospital. "We are proud to now offer the most advanced childhood cancer treatment options here at Renown, close to home and convenient for area patients and their families.” This membership allows Renown to enroll our youngest patients – just like Austin – in the latest clinical trials, including groundbreaking treatments, studies to understand these diseases better and in addition, this program will focus on supportive care and survivorship. "The COG allows Renown providers to access treatment plans that were not available to non-COG hospitals when Austin was receiving treatment," said Brenda. "It comforts me to know that not only can children receive cancer treatment right at home, but their parents can now elect for them to participate in trials and plans that are at the forefront of cancer treatment today." How You Can Help Make a Difference Renown Health is focused on being the destination for all your family’s health and healthcare needs. As a not-for-profit health system, Renown relies heavily on community funding. If you are interested in supporting Renown Health, and kids like Austin, please consider giving to Renown Health Foundation. Donations are accepted through the following ways: Make a gift at www.renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., 02, Reno, NV 89502

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    • Renown Health Foundation
    • Renown Health

    Why I Give: Rebecca's Story

    Giving back to the community is important to Rebecca Dickson. For over 35 years, she’s been unwavering in her support of Renown Health and Reno’s non-profit community. Hearing that she’s made a difference in someone’s life feels good. But for Rebecca, the greater reward is something more personal. “Giving back is a way of life,” Rebecca said, “that’s what you do.” Inspired by her parents, the act of generosity was instilled in her from a young age. Growing up, Rebecca remembers her mother’s thoughtful generosity with others. It was her mother, Fianna Dickson Combs, who inspired and helped plan Fianna’s Healing Garden in the heart of the Renown Regional Medical Center campus. The garden is Fianna’s legacy and gift to those in need of comforting, healing and quiet contemplation. Walking through the garden, Rebecca points out the fountain. She talks about choosing it for its calming sound. Birds chirp on the trees overhead. The space is beautiful; it’s tranquil and comforting. Fianna’s Healing Garden was completed in 2009. In 2020, to celebrate the tenth anniversary of the garden, Rebecca and her uncle, Harvey Fennell, led an expansion project to grow the space. Inside the garden, there are pathways, benches, sculptures, fountains and over 2,000 plants and trees. Roses are life “The rose garden is special,” said Rebecca. It was carefully curated in honor of Fianna and her sisters to create a peaceful space for reflection. There are 21 roses of differing sizes and colors. “The roses should be experiential. The fragrance, the colors; they are life with good days and bad. Fianna was a master gardener and felt that gardens tend to the mind, body and soul,” says Rebecca. Honoring Fianna’s Legacy Throughout the hottest days of summer, Rebecca and her partner, David Geddes, visit the garden. They maintain the roses, removing damaged branches and pruning them. “It’s not work,” says Rebecca, “it’s a joyful opportunity that makes us feel good.” Being in the garden reminds Rebecca of her mother and the need for healing gardens in healthcare. When her mother was in the hospital, her doctor encouraged her to get outside and into nature. At the time, Renown didn’t have an outdoor garden space. From then on, it was Fianna’s mission to create a healing garden for patients, caregivers and visitors. Nature reduces stress and anxiety. It also provides comfort and distraction. Healing gardens offer spiritual and healing benefits, and they’ve been proven to improve health outcomes. Before Fianna passed, her plans for at healing garden at Renown were already underway. Making an Impact Rebecca is a lifelong philanthropist. She serves on countless boards, volunteering her time to give back to the community. She currently sits on Renown Health Foundation’s Board. Through her volunteer work, Rebecca not only gets to experience the joy of helping others first-hand, but she also gets an inside view of how non-profits operate and what they need most. That information helps her decide how to direct her support in the most impactful way. Rebecca receives cards and phone calls thanking her for Fianna’s Healing Garden and the comfort it provides. But Rebecca insists that she’s not to thank. Rebecca remembers every person who has supported the garden. Fianna’s Healing Garden is donor-funded, and would not be possible without the support of the community, her uncle, Harvey Fennell, Fianna’s closest friends, Renown physicians and employees, Renown Health Foundation and countless community foundations and local donors. She says, “The garden is a collaborative project. It takes a village to build and maintain, but it’s worth it!” From all of us at Renown, thank you, Rebecca, for your inspiration and dedication to Renown! Fianna’s Healing Garden is located at Renown Regional Medical Center and is open for all to experience the healing power of nature. Click here to take a virtual tour of the garden. Renown Health Foundation’s Why I Give series recognizes donors, volunteers, corporations, foundations and others who provide philanthropic support to Renown. We are fortunate to have generous donors whose funding helps support and expand our efforts to meet the growing needs of the communities we serve. To learn more about how you can support Renown, please email foundation@renown.org or call 775-982-5545.

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Number of results found: 5
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