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Jakob’s Journey at Renown Children’s Hospital
In August 2016, six-year-old Jakob was admitted to Renown Children's Hospital with what seemed like a common ear infection. Jakob's condition quickly progressed, and he started experiencing neurological symptoms such as difficulty speaking and a full-body shutdown. Doctors, neurologists and specialists from Renown worked with doctors from Stanford, where he was ultimately diagnosed with Bickerstaff brainstem encephalitis (BBE). BBE is a rare, autoimmune response that attacks the nerves in the body due to an acute illness such as a cold, flu or, in Jakob's case, an ear infection. Jakob could not breathe or eat and experienced paralysis on the side of his face, throat, stomach, bowels, lungs and legs. In addition, he started to rapidly lose weight as well as body function. Jakob lost half his body weight which resulted in the need for a Gastrostomy tube. This device is placed surgically and gives direct access to the stomach to give the child the nutrition needed. He also needed occupational therapy, and after three and a half months of ICU respiratory therapy, surgeries and treatments, he was released home to regain his strength. Forever Grateful Anica, Jakob's mom, said, "If it were not for the quick response and unconditional support and compassion from the team at Renown, Jakob would not be here today." Jakob's family is forever grateful to the staff, community and expertise at Renown for their unwavering commitment to their son and family during their most trying time in life. "When I met Jakob on the first day of his illness, so much was unknown. My team and I were worried, as his symptoms were very unusual. His rapid deterioration, after being a perfectly healthy child, was clearly terrifying for his parents. Handing over a child's care to a team of strangers is one of the scariest things that can happen to parents,” said Dr. Kris Deeter, Physician in Chief at Renown Children’s Hospital. “However, Anica and Jeremiah were also very clear that they did not want Jakob transferred somewhere else. So, we used all our resources to care for him, arrive at a diagnosis, and start aggressive therapies. They listened to every word we said, educated themselves, and became partners in Jakob's care. We all became part of Team Jakob, and soon, he proved to us just how strong he was." Today, Jakob is 13 years old and thriving in every aspect of his life. He is currently on the honor roll in school and finds joy in his newfound passion for the violin. He loves spending his free time learning about mixing music, making new friends and traveling to different parts of the country. This summer, he will travel to Europe to explore his passion for culture. The family says, "We owe it all to the family and staff at Renown."
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Helpful Caregivers Make a Wedding Dream Come True
A wedding is a big day for the wedding couple, but it’s also special for loved ones. A patient at Renown, Ken, got to take part in his daughter’s special day as her wedding plans changed to accommodate his medical condition. Grab some tissues and read how Renown’s team of compassionate caregivers and chaplains planned a wedding in Fianna’s Healing Garden. Ken was hospitalized at Renown Regional Medical Center where he was battling a lung problem – which was unrelated to COVID-19 – and his condition worsened rapidly on Wednesday, Aug. 12. His family made the decision to transition him to palliative care, which helps patients near the end of their lives remain comfortable, while supporting their dignity and quality of life. Ken’s medical condition altered wedding plans for his daughter, Chandra, and her fiancé, Tyler, who were planning to tie the knot later in 2020. Chandra wanted her father there, but knew he could not leave the hospital. That’s why Chandra’s sister, Heather, approached Ken’s care team with a request to have a small wedding ceremony at the hospital. Planning the Wedding A member of Ken’s care team, Amy Heston, registered nurse (RN), began planning how the wedding could be held outdoors in Fianna's Healing Garden in the E. L. Wiegand Pavilion, which was donated by the E. L. Wiegand Foundation. In 24 hours, Amy planned a wedding ceremony with the help of her colleague, Breyanna Aufiero, RN; the Renown Spiritual Care team; and nursing leaders on the coronary intensive care unit (ICU). Together, they decorated the aisle in the garden with flowers and battery-operated candles. They also made a sign for Ken’s hospital bed, which read, “Father of the Bride,” and crafted a bow tie for him to wear for the special occasion. With visitor restrictions in place at the hospital due to coronavirus (COVID-19), having the wedding outside in the Healing Garden allowed for more members of Ken’s family to attend including his wife, Charlotte, and his dog, Bella. Every step in planning the wedding required thoughtful and thorough care coordination so Ken could participate. His breathing was supported by oxygen and special arrangements were made to transport the oxygen tanks he needed to take part in his daughter’s wedding. Amy worked with respiratory technician, Kasey Benfield, and critical care technician, Ruben Duckworth, to ensure Ken’s oxygen needs were met using portable machines. Celebrating Love and Life Together Ken’s team of caregivers bathed him and shaved his face so he could look and feel his best for the ceremony. They put on his bow tie, covered his bed in decorations and his favorite blue, flannel blanket, and wheeled his bed outside for the ceremony. Renown associate chaplains Terri Domitrovich and Susan Palwick coordinated music and performed the ceremony for Chandra and Tyler on Thursday, Aug. 13, 2020. The bride and groom shared their first dance in the garden and Ken’s care team provided water and treats to give the family a full wedding experience. Shortly after the ceremony, Ken passed away. This wedding provided Ken and his family meaningful memories for their big life-changing moments as they celebrated and said goodbye. “Seeing Ken surrounded by family he never would have gotten to see again while in the hospital, watching him get to share a father-daughter dance with Chandra on her wedding day, and having him tell me that this day meant more to them than we would ever know were some of the most moving moments I’ve witnessed as a nurse,” Amy said. “I am so thankful for the team we have here. I know that this beautiful day wouldn’t have happened without the help of every single person who gave their time, money, creativity and passion to make it a day to remember.”
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Renown Celebrates Pride Month and LGBTQ+ Communities with Love
Rainbow lights illuminate Renown’s iconic “LOVE” sculpture, and powerful employee stories shared during Pride Month. Reno, Nev. (June 16, 2020) –In celebration of Pride Month and Reno’s LGBTQ+ communities, Renown’s LOVE sculpture, a one-ton, welded aluminum artwork with letters 10-feet tall and eight-feet wide, will be illuminated by rainbow LED lights throughout the month of June. LOVE is located at Renown Regional Medical Center’s main entrance at 1155 Mill Street in Reno, Nev. and visible to vehicular and pedestrian traffic along the Mill Street and Ryland Street corridors. Dr. Tony Slonim, president and CEO of Renown says, “At Renown, we are proud to support our LGBTQ+ communities. During Pride Month and beyond, we are honored to offer an inclusive, safe environment for our staff and patients—one that celebrates diversity in all its forms. The LOVE sculpture has already brought a bright light into our world, and I look forward to the joy it will bring to everyone who gets to see it in rainbow colors.” In commemoration of Pride Month, Renown is committed to highlighting some of the LGBTQ+ individuals who make up a portion of its 7,000 employees. Sean Savoy, Renown’s manager of spiritual care, shares how his experiences as a gay man positively affect his career in spiritual healing and the compassion he shows others. "The foundation of spiritual care is compassion – being with people in need by caring, supporting, and showing empathy, and promoting a sense of well-being,” said Savoy. Being a member of the LGBTQ+ community informs that deep sense of compassion and empathy in a very special and unique way.I have found the intersectionality of my gay and spiritual selves has been a blessing in my life." Created by artist Laura Kimpton and fabricated by Jeff Schomberg, the LOVE sculpture first appeared at Burning Man in 2019. Thanks to a partnership with non-profit Artown, the sculpture debuted at Renown in April of 2020, and since served as a symbol of hope and determination for hospital staff, patients and community members amid the COVID-19 pandemic. Generous donors and the Renown Health Foundation funded the sculpture’s instillation. ### About Renown Health Renown Health is a locally governed and locally owned, not-for-profit integrated healthcare network serving northern Nevada, Lake Tahoe and northeast California. Renown is one of the region’s largest private employers with a workforce of more than 7,000. It comprises three acute care hospitals, a rehabilitation hospital, the area’s most comprehensive medical group and urgent care network, and the region’s largest and only locally owned not-for-profit insurance company, Hometown Health. Renown has a long tradition and commitment to continually improve the care and the health of our community. For more information, visit renown.org. Media Contact: Public Relations M: 775-691-7308 E: news@renown.org
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Iconic Love Sculpture to Make Permanent Home at Renown
Flatbed concert by power house group Jelly Bread set to commemorate this monumental gift from the Robert and Dorothy Keyser Foundation. Renown Health Foundation announced today that the LOVE sculpture, a one-ton, welded aluminum artwork with letters 10-feet tall and eight-feet wide, has found a permanent home at Renown Regional Medical Center’s main entrance thanks to a donation from the Robert and Dorothy Keyser Foundation. To celebrate, Renown has partnered with Carson City’s Brewery Arts Center to bring music to the people of 89502with a flat bed concert by the nationally-touring band and Jelly Bread. The concert will be tonight from 5-8 p.m. and the truck will stop at various locations near the LOVE sculpture, playing feel-good, urban sounds of funk and rock. See the official concert route here and attached. “Since April and the height of the COVID-19 pandemic, the LOVE sculpture has been a powerful source of hope, inspiration and determination for our community,” said Blake Smith, chair of the Keyser Foundation. “Now, we can’t imagine the entrance of the hospital without it. We are happy that the incredible piece of art will continue shining a bright light while spreading warmth and comfort to all who care for those in our hospitals, patients and families, and those who pass by.” Blake Smith will be at the LOVE sculpture today from 11 a.m. – noon to speak on the Keyser Foundation’s donation. A Renown spokesperson will also be available to speak on the evening’s traveling flatbed concert festivities. Members of the media are invited to the LOVE sculpture tonight at 5 p.m. to cover the concert. The LOVE structure was originally slated to be on display at Renown from April 16-July 16 as part of a partnership with local non-profit, Artown. However, because of the generosity of the Keyser Foundation, the sculpture will remain in its current location, clearly visible to employees, physicians, patients, families and vehicular and pedestrian traffic along the Mill and Ryland Street corridors. Dr. Tony Slonim, president and CEO of Renown says, “Purchasing the LOVE sculpture to stay on our Regional Medical Center campus was an incredible act of love demonstrated by our former Renown Board Chair, Blake Smith and the Keyser Foundation— a love for our community, a love for those fighting for their health and a love for those fighting to keep our community safe. This piece of art has already inspired so many and comforted those in need during such a notable time in our nation’s history. I encourage everyone to experience this wonderful gift to our community.” To celebrate the sculpture’s new home, Jelly Bread will play an upbeat musical set on a traveling flatbread truck, sharing the love with nearby neighborhoods and parks—beginning and ending at the LOVE sculpture. “We are extremely grateful to Blake Smith and the Keyser Foundation for bestowing a gift our entire community can enjoy,” said Renown Health Foundation’s chief development officer, Greg Walaitis. “Since the concept of love and music are harmonious, we can’t imagine a better way to celebrate this gift than with a community-wide flatbed concert by a band that exudes positivity, and of course, LOVE.” Debuting at Burning Man in 2019, the LOVE sculpture was created by artist Laura Kimpton and fabricated by Jeff Schomberg. Over the years, the duo has collaborated to create 18 letter-based sculptures—including the popular BELIEVE and HOME, which are located in Reno and OINK and MOM pieces, which have been featured around the world. Renown believes that healthcare and the arts work hand-in-hand to help heal the mind, body and soul. Displays of visual art and musical performances can be observed at Renown locations throughout the region, year-round. Ways to Support the Arts at Renown Health: Make a gift at renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., O2, Reno, NV 89502 Venmo: @RenownFoundation About Renown Health Renown Health is the region’s largest, locally owned and governed, not-for-profit integrated healthcare network serving Nevada, Lake Tahoe and northeast California. With a diverse workforce of more than 7,000 employees, Renown has fostered a longstanding culture of excellence, determination and innovation. The organization comprises a trauma center, two acute care hospitals, a children’s hospital, a rehabilitation hospital, a medical group and urgent care network, and the region’s largest, locally owned not-for-profit insurance company, Hometown Health. Renown’s institute model addresses social determinants of health and includes: Child Health, Behavioral Health & Addiction, Healthy Aging and Health Innovation. Clinical institutes include: Cancer, Heart and Vascular Heath, Neurosciences and Robotic Surgery. Renown is currently enrolling participants in the world’s largest community-based genetic population health study, the Healthy Nevada Project®. For more information, visit renown.org.
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