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Jakob’s Journey at Renown Children’s Hospital
In August 2016, six-year-old Jakob was admitted to Renown Children's Hospital with what seemed like a common ear infection. Jakob's condition quickly progressed, and he started experiencing neurological symptoms such as difficulty speaking and a full-body shutdown. Doctors, neurologists and specialists from Renown worked with doctors from Stanford, where he was ultimately diagnosed with Bickerstaff brainstem encephalitis (BBE). BBE is a rare, autoimmune response that attacks the nerves in the body due to an acute illness such as a cold, flu or, in Jakob's case, an ear infection. Jakob could not breathe or eat and experienced paralysis on the side of his face, throat, stomach, bowels, lungs and legs. In addition, he started to rapidly lose weight as well as body function. Jakob lost half his body weight which resulted in the need for a Gastrostomy tube. This device is placed surgically and gives direct access to the stomach to give the child the nutrition needed. He also needed occupational therapy, and after three and a half months of ICU respiratory therapy, surgeries and treatments, he was released home to regain his strength. Forever Grateful Anica, Jakob's mom, said, "If it were not for the quick response and unconditional support and compassion from the team at Renown, Jakob would not be here today." Jakob's family is forever grateful to the staff, community and expertise at Renown for their unwavering commitment to their son and family during their most trying time in life. "When I met Jakob on the first day of his illness, so much was unknown. My team and I were worried, as his symptoms were very unusual. His rapid deterioration, after being a perfectly healthy child, was clearly terrifying for his parents. Handing over a child's care to a team of strangers is one of the scariest things that can happen to parents,” said Dr. Kris Deeter, Physician in Chief at Renown Children’s Hospital. “However, Anica and Jeremiah were also very clear that they did not want Jakob transferred somewhere else. So, we used all our resources to care for him, arrive at a diagnosis, and start aggressive therapies. They listened to every word we said, educated themselves, and became partners in Jakob's care. We all became part of Team Jakob, and soon, he proved to us just how strong he was." Today, Jakob is 13 years old and thriving in every aspect of his life. He is currently on the honor roll in school and finds joy in his newfound passion for the violin. He loves spending his free time learning about mixing music, making new friends and traveling to different parts of the country. This summer, he will travel to Europe to explore his passion for culture. The family says, "We owe it all to the family and staff at Renown."
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Helpful Caregivers Make a Wedding Dream Come True
A wedding is a big day for the wedding couple, but it’s also special for loved ones. A patient at Renown, Ken, got to take part in his daughter’s special day as her wedding plans changed to accommodate his medical condition. Grab some tissues and read how Renown’s team of compassionate caregivers and chaplains planned a wedding in Fianna’s Healing Garden. Ken was hospitalized at Renown Regional Medical Center where he was battling a lung problem – which was unrelated to COVID-19 – and his condition worsened rapidly on Wednesday, Aug. 12. His family made the decision to transition him to palliative care, which helps patients near the end of their lives remain comfortable, while supporting their dignity and quality of life. Ken’s medical condition altered wedding plans for his daughter, Chandra, and her fiancé, Tyler, who were planning to tie the knot later in 2020. Chandra wanted her father there, but knew he could not leave the hospital. That’s why Chandra’s sister, Heather, approached Ken’s care team with a request to have a small wedding ceremony at the hospital. Planning the Wedding A member of Ken’s care team, Amy Heston, registered nurse (RN), began planning how the wedding could be held outdoors in Fianna's Healing Garden in the E. L. Wiegand Pavilion, which was donated by the E. L. Wiegand Foundation. In 24 hours, Amy planned a wedding ceremony with the help of her colleague, Breyanna Aufiero, RN; the Renown Spiritual Care team; and nursing leaders on the coronary intensive care unit (ICU). Together, they decorated the aisle in the garden with flowers and battery-operated candles. They also made a sign for Ken’s hospital bed, which read, “Father of the Bride,” and crafted a bow tie for him to wear for the special occasion. With visitor restrictions in place at the hospital due to coronavirus (COVID-19), having the wedding outside in the Healing Garden allowed for more members of Ken’s family to attend including his wife, Charlotte, and his dog, Bella. Every step in planning the wedding required thoughtful and thorough care coordination so Ken could participate. His breathing was supported by oxygen and special arrangements were made to transport the oxygen tanks he needed to take part in his daughter’s wedding. Amy worked with respiratory technician, Kasey Benfield, and critical care technician, Ruben Duckworth, to ensure Ken’s oxygen needs were met using portable machines. Celebrating Love and Life Together Ken’s team of caregivers bathed him and shaved his face so he could look and feel his best for the ceremony. They put on his bow tie, covered his bed in decorations and his favorite blue, flannel blanket, and wheeled his bed outside for the ceremony. Renown associate chaplains Terri Domitrovich and Susan Palwick coordinated music and performed the ceremony for Chandra and Tyler on Thursday, Aug. 13, 2020. The bride and groom shared their first dance in the garden and Ken’s care team provided water and treats to give the family a full wedding experience. Shortly after the ceremony, Ken passed away. This wedding provided Ken and his family meaningful memories for their big life-changing moments as they celebrated and said goodbye. “Seeing Ken surrounded by family he never would have gotten to see again while in the hospital, watching him get to share a father-daughter dance with Chandra on her wedding day, and having him tell me that this day meant more to them than we would ever know were some of the most moving moments I’ve witnessed as a nurse,” Amy said. “I am so thankful for the team we have here. I know that this beautiful day wouldn’t have happened without the help of every single person who gave their time, money, creativity and passion to make it a day to remember.”
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Dr. Lee Schwartzberg Honored With 2023 Legends in Cancer Award
Recognized as one of the world’s leading breast cancer experts as a 2023 Legends in Cancer Honoree Dr. Lee Schwartzberg, FACP, Section Chief of Medical Oncology at the William N. Pennington Cancer Institute at Renown, was honored as the 2023 Legends in Cancer honoree at this year's Best of Breast conference for his contributions to the field of breast cancer. The conference took place on Jan. 21 and 22. Breast cancer is a leading cause of cancer death among women in the United States. According to the American Cancer Society, about 1 in 8 women will develop breast cancer and about 1 in 36 women will die from breast cancer. Breast cancer is associated with increased age, hereditary factors, obesity, and alcohol use. Since 1990, breast cancer death rates across the country, and here in Washoe County have declined progressively due to advancements in treatment, detection, and care. Each year in the United States, about 264,000 cases of breast cancer are diagnosed in women and about 2,400 in men. Here in Washoe County, more than 21 deaths per 100,000 females are due to breast cancer, a significant decrease since 2012 when 24 deaths per 100,000 females were reported. Dr. Schwartzberg was selected for this award based on his unique and vast contributions to advancing science and patient care, including his major research interests such as therapeutic approaches to breast cancer, targeted therapies, and supportive care. The selection committee evaluates each candidates’ body of work — including contributions to the field of breast cancer in clinical research, patient care, mentoring and community service — before deciding on an honoree. “Dr. Schwartzberg is deserving of this honor. As a national expert in the study and treatment of breast cancer, precision medicine and supportive care, Dr. Schwartzberg is transforming cancer care and improving the lives of all of us in northern Nevada. As the most preferred cancer program in the region, we are working with the support of donors like The William N. Pennington Foundation to recruit additional oncology specialists and cancer science researchers to become the first National Cancer Institute-designated comprehensive cancer care center in Nevada," said Dr. Brian Erling, MBA, CEO of Renown Health. “The incredible care that comes from the William N. Pennington Cancer Institute is possible because of nationally recognized oncologists like Dr. Schwartzberg.” “Dr. Schwartzberg completed fellowship training in medical oncology and hematology at Memorial Sloan Kettering Cancer Center in New York, where he also served as Chief Medical Resident and was a founding member of the institutional ethics committee,” add Paul J. Hauptman, MD, dean of the University of Nevada, Reno School of Medicine and chief academic officer for Renown Health. “We are proud that he serves as a professor of clinical medicine at the University of Nevada, Reno School of Medicine. His research interests include supportive care, precision medicine and patient-reported outcomes in breast cancer and he has published over 300 peer-reviewed manuscripts, book chapters and monographs.” “It is an honor to work with Dr. Schwartzberg and his patients have the most incredible things to say about the care he provides.” said Dr. Max J Coppes, PhD, MBA, Director, William N. Pennington Cancer Institute, Renown Health. “He understands that his patients are going through one of the most challenging times in their lives. Dr. Schwartzberg brings decades of experience to our community, is a great listener, and treats everyone with compassion and dignity. We are so proud to have him at Renown.” The Best of Breast Conference is an innovative medical education program that gathers the world's leading breast cancer experts to discuss cases with high-risk characteristics, adjuvant and metastatic treatment advances, interdisciplinary care and survivorship and recurrence — all while incorporating data from the major oncologic annual meetings. Dr. Schwartzberg has been selected to chair Total Health’s spring oncology education retreat in Lake Tahoe on April 15 and 16. The event’s comprehensive agenda will allow attendees to engage with the latest research and strategies in cancer care while networking with colleagues from across the country in a peaceful setting. Additional conference information is available here. For women, breast exams using mammography after 40 years old is recommended. For those age 75 and older, a mammogram is recommended every year. Having regular mammograms can lower the risk of dying from breast cancer. Both 3-D digital mammography and whole breast ultrasounds are available at the Greenberg Breast Health Center at Renown and other locations across northern Nevada. The Affordable Care Act makes breast cancer screening and counseling free. All health plans must cover these benefits at no cost to you. Renown MyChart app users can self-schedule a mammogram appointment. To call to schedule, dial 775-982-8100. At the William N. Pennington Cancer Institute at Renown Health, patients receive innovative, personalized treatment to fight cancer while an experienced team provides the support and technology to maintain the highest quality of life. The Renown team’s clinical expertise and advanced treatment options blend evidence-based care with leading-edge research to improve cancer outcomes for every patient and family. For more information or a referral, visit renown.org/cancer. About Renown Health Renown Health is Nevada’s largest, not-for-profit integrated healthcare network serving Nevada, Lake Tahoe, and northeast California. With a diverse workforce of more than 7,000 employees, Renown has fostered a longstanding culture of excellence, determination, and innovation. The organization comprises a trauma center, two acute care hospitals, a children’s hospital, a rehabilitation hospital, a medical group and urgent care network, and the locally owned not-for-profit insurance company, Hometown Health. Renown is currently enrolling participants in a community-based genetic population health study, the Healthy Nevada Project®. About Total Health Total Health is a medical information company of planning experts who produce tailored content, courses, and conferences for oncology healthcare providers, virtual and in-person. Total Health believes knowledge is power. Its mission is to give oncology healthcare providers an educational experience that equips them with the latest strategies to improve clinical practice and treatment outcomes.
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