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Keeping Research Close to Northern Nevada
Clinical research provides agency for our patients navigating a scary diagnosis, and the field has never been stronger in northern Nevada. This strength is thanks in part to the Affiliate Clinical Research Office (ACRO) formed by the 2021 affiliation between Renown Health and the University of Nevada, Reno School of Medicine. Since its creation, the ACRO team has been busy ensuring that community members have access to the latest care options and exceptional experiences as participants in both research and their healthcare. Here are just a few things that set this office apart from the rest. 1. A focus on engagement In 2022, the ARCO team focused on promoting a research culture with patients, clinicians, residents and students by intentionally engaging with healthcare providers, department administrators, internal research team members and leadership. They educated the community with learning materials that emphasized the importance of doing research. This team also worked with front-line staff to raise awareness and excitement about the clinical research options available for Renown Health patients. 2. Meaningful partnerships The most impactful partnership to date is between Renown Health and UNR Med. By identifying opportunities and leveraging resources across institutions, we have maximized our impact and built a solid and sustainable foundation. This gives the people of northern Nevada greater access to new interventions or novel treatments. This team is also investing in the community and national partnerships to provide training opportunities for our research staff and learning opportunities for our medical students. 3. Novel treatments across many disease areas Our research study offerings must reflect the healthcare needs of our community and the expertise of practicing clinicians. The department has over 80 active studies in neurology, pulmonology, oncology, cardiology, pediatrics and disease prevention. The ARCRO team strives to expand care opportunities to allow our community members to stay close to home when seeking care. This year, they will continue exploring our community's unmet healthcare needs by bringing new treatment options to the greater Reno area.
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Getting to the HEART of Research
In February, we think about hearts not just in honor of Valentine’s Day but because it is American Heart Association Month. This is a great reminder to focus on our personal cardiovascular health. Renown Health helps patients think about their heart health with our world-class providers and cutting-edge treatments through our Cardiovascular Clinical Trials. “Research serves a vital role in the future care of cardiovascular diseases. Being involved in research will help our medical community to further discover new treatment plans in our quest for life preservation and extension,” Dr. Thomas To, Cardiologist and Researcher at Renown Health. For example, let’s talk about atherosclerosis. When our hearts are healthy, they are a strong muscle that pumps our oxygen-rich blood through our coronary arteries. Over time, cholesterol and fats can build up in our arteries. This is a condition known as atherosclerosis. This type of plaque buildup in the arteries can lead to a heart attack or stroke if not properly managed. If you are experiencing chest pain or discomfort, shortness of breath or pain in areas of the upper body, these can be the warning signs of a heart attack, and you should call 911. One contributing factor to atherosclerosis is elevated lipoprotein(a) levels and the accumulation of cholesterol in the arteries, which increases the likelihood of a heart attack or stroke. Lipoprotein(a) is tested separately from the standard panel that is completed for cholesterol management, and while your total cholesterol levels may be in a healthy range, lipoprotein(a) levels can still be elevated. "Increasingly we are realizing that lipoprotein(a) levels can be used as an important assessment in more carefully delineating an individual's risk of future cardiovascular events and treatment targets" said Dr. Michael Bloch, Lipid Specialist and Researcher at Renown Institute for Heart and Vascular Health. While it is clear that elevated lipoprotein(a) contributes to atherosclerosis, there are currently no approved medications for reducing cardiovascular disease risk through reducing lipoprotein(a) levels. This is why Renown Health’s Research Office is proud to offer a phase III clinical trial, called the OCEAN(a) study, to our patients with elevated lipoprotein(a) levels as a care option for management of their heart disease risk. Our teams of expert providers and researchers are here to support you on your healthcare journey. “I am thrilled to be able to be part of this study and bring opportunities like this to our patients. The highlight of my day is getting to hear life stories from my patients during our study visits,” Lisa Preciado, Primary Clinical Research Coordinator for the OCEAN(a) study said. Join us in raising awareness around American Heart Month by talking to your provider about lipoprotein(a) at your next appointment. At Renown Health, our goal is to make it easy for patients to access clinical research as a care opportunity where patients can access a variety of standard care treatment options for their health condition or choose to participate in a clinical trial. For more information about clinical trial opportunities available to you or to ask any questions, contact the Renown Research Office at Renown-CRD@renown.org or 775-982-3646.
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Panda Cares Center of Hope at Renown Children's Hospital
When you have an ill child in the hospital, it is a stressful event. And Panda Express is helping local families support children who need special care. Their generous donation provides much-needed equipment, programs, and resources via the new Panda Cares Center of Hope, Renown Children’s Specialty Center. Their partnership directly benefits patients and their families! The ‘Panda Cares Center of Hope, Renown’s Children’s Specialty Center’ In fact, this new center provides care to not only children, but also comprehensive support to the entire family. Similarly, it creates an environment that reduces stress, promotes healing, and provides a superior patient and family experience. This facility upholds Panda Express’ mission, vision, and values and its four pillars: to directly help fund the emotional, mental, physical, and spiritual needs of children. This center, the first-ever in northern Nevada, will provide care for children who have chronic conditions. In particular, it offers ongoing treatment, health management, and specialty medical services, including: Nephrology Endocrinology Neurology Pulmonary Infectious Diseases Medical Genetics Adolescent Medicine How You Can Help! When you order from Panda Express, you can opt to round up your change, which will help support programs and services, such as the Center of Hope for Renown Children’s Hospital. Order Online A Partnership for Health & Education of Underserved Youth This partnership allows Renown Children’s Hospital to continue to strengthen regional services and increase Panda’s visibility within our growing community. Last year, 21,930 sick children received care from Renown Children’s Hospital. To date, Panda Express has raised $449,200 in financial support to assist us in providing health and education to every child, regardless of illness, injury, insurance, or ability to pay. Panda Express funds have already supported: Giraffe omni beds for the NICU Ultrasound machine for the Children’s ER Panda warmers and a hand held Accuvein machine Child Life Program to support sick patients and families Meeting room in the Children’s Specialty Center In kind donations, volunteer time and support of local events such as the University of Nevada Reno, Wolf Pack Dance Marathon
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Ovarian Cancer Survivor Shares Decision to Try Clinical Trial
While there used to be three basic treatment options for cancer -- surgery, radiation and chemotherapy, or a combination of the three -- there's a fourth option: clinical trials. Here, a Renown patient shares her successful battle with ovarian cancer, aided by a clinical trial. Shari Flamm's battle with ovarian cancer began in 2011. She was experiencing prolonged bleeding, irregular thyroid levels and anemia and was scheduled to undergo a hysterectomy. Before the surgery, her gynecologist ran routine tests to check for cancer as a precautionary measure. All tests were negative for cancer, expect her CA 125 test. A CA 125 test measures the amount of the protein CA 125 (cancer antigen 125) in the blood. In some cases, a CA 125 test may be used to look for early signs of ovarian cancer in women with a very high risk of the disease. In most laboratories, the normal level is 0 to 35 units/ml. Flamm's CA 125 level was 121. As Flamm can attest, early diagnosis played a key role in her battle with ovarian cancer. September is Gynecologic Cancer and Ovarian Cancer Awareness Month – an important time to learn the signs, symptoms and risk factors of this type of cancer so your doctor can diagnosis the disease as early as possible. Ovarian Cancer: Round One Despite the elevated CA 125 results, her doctor recommended they move forward with the hysterectomy. But when surgery began, doctors discovered a mass. She had stage 4 cancer. The procedure was halted, the mass was biopsied and she was immediately seen by Dr. Peter Lim of the The Center of Hope. Following diagnosis, Flamm underwent surgery with Dr. Lim to remove the cancer, which had spread to part of diaphragm, spleen, colon and other organs. Three months after surgery, Flamm had recovered enough to start six rounds of chemotherapy in her hometown of Carson City. She continued working at a doctor's office during her treatment, and was grateful for Dr. Lim’s ability to co-manage her care so she could stay close to work and family. “To me, chemo was the scariest part because I didn’t like feeling sick,” Flamm says. Thankfully, her body responded well to the treatments and she was back to the things she loved. “I stated working out at the gym, even if it was only for 10 minutes,” she says. She also stayed positive by spending time with her grandchildren, attending a San Jose Sharks hockey game, going for walks and enjoying concerts. Ovarian Cancer: Round Two In November 2014, Flamm had a cancer check-up. That’s when doctors discovered three cancerous tumors. For this round, Flamm choose another treatment option -- clinical trials at Renown Institute for Cancer. Clinical trials are the studies that test whether drugs work, and inform doctors' decisions about how to treat their patients. Flamm participated in a clinical trial that featured oral-targeted therapy stronger than IV chemotherapy. The hope was for the drug to shrink her tumors, however the result was stabilization -- meaning the lumps weren’t growing or spreading. The best part of the clinical trial, Flamm says, was the constant monitoring. Between the CT scans every six weeks, a heart scan every three months and monthly doctor visits, she was confident that if the cancer started growing or spreading, her healthcare team would catch it right away. For Flamm, the benefits of the clinical trial included less hair loss, less fatigue and more time to focus on what’s important in her life -- her family. “I decided I wasn’t going to be that sick grandma on the couch with cancer,” Flamm says. After taking the oral medication for one year, Flamm developed a rash and discontinued treatment due to discomfort. Clinical Trials, Setbacks and Survival In June 2016, two of the three tumors began to grow and had to be surgically removed. Despite the setback, Flamm was determined to maintain a positive outlook. "You have to stay positive because cancer feeds off anger, depression and stress," Flamm says. Flamm was released to go home with clear margins, meaning the tumors were removed and are surrounded by a rim of normal tissue that does not have cancerous cells. Flamm says her outlook on life has changed drastically since her first cancer diagnosis. “Your whole mentality changes when cancer disturbs your life," Flann says. "The things that weren’t important, are now ever so important. I’m a lot calmer now,” Flamm says.
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What Does It Mean to Participate in a Clinical Trial?
Participating in a clinical trial is voluntary and a personal choice. Clinical trials are research studies that involve people and are an important part of patient care. What is a clinical trial? Clinical trials are research studies that involve people, and they are an important part of patient care. There are several different types of clinical trials; some are designed to understand trends in a disease or identify better ways to diagnose a condition, while others determine if a new treatment is safe and works when treating, improving or preventing a health condition. There are over 400,000 clinical trials currently being conducted in the United States, and even more across the world. This includes health conditions such as heart failure, cancer, Parkinson’s Disease, respiratory conditions like COPD, common infections, cystic fibrosis, and many more. Clinical trials lead the healthcare industry to new discoveries that contribute to reliable and exact care, improving healthcare quality and saving lives. Clinical trials are conducted by a team of researchers, including doctors, pharmacists and clinical research coordinators. These research teams are highly skilled in their specialty areas, often providing traditional patient care and seeing research patients in the same day. These teams are responsible for making sure the clinical trial is completed correctly, and their patients are their top priority. Why should I consider participating in a clinical trial? Participating in a clinical trial is voluntary and a personal choice. There are many reasons why patients decide to get involved in clinical research. While many clinical trials are designed for patients who have a certain health condition, many studies also ask healthy volunteers to contribute in order to compare health outcomes. Clinical trials are also for patients at all different stages of their diagnosis. Depending on the specific study, the patient may receive access to a new cutting-edge treatment before it is widely available. When patients join a clinical trial, the research team becomes a health partner dedicated to their health and well-being. When patients join a clinical trial, they make an informed decision in their healthcare by weighing all available options in addition to routine treatments. Research participants know that they are contributing meaningfully and helping other patients like them. Where can I find more information about clinical trials at Renown Health? Renown Health’s mission is to make a genuine difference in the health and well-being of the communities we serve. Renown’s clinical trial portfolio offers leading care options to patients in northern Nevada, close to home, in a variety of specialties. Contact the Renown Clinical Research Office for more information on clinical trials available to you!
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How the UNR Med Affiliation Impacts Renown's Clinical Research
The University of Nevada, Reno School of Medicine (UNR Med) and Renown Health affiliated in June of 2021. First Integrated Health System The University of Nevada, Reno School of Medicine (UNR Med) and Renown Health affiliated in June of 2021. This agreement established Nevada’s first integrated health system with missions in education, patient care, and clinical research. While there was extensive media coverage regarding the historic partnership in general, there is less information regarding the important impact to the community. In terms of clinical research, the potential benefits are endless. The School of Medicine has a very successful program in molecular bio sciences. That means they have a plethora of brilliant minds working on the smallest components of life related to body systems and disease. With the affiliation, there is a distinct opportunity to bridge some of these important findings happening on campus and translate them into care protocols for the patients seen in the community. Making connections between the cellular basics to the physical manifestations of conditions is a key opportunity of the affiliation. Additionally, cooperative funding models for projects that fit in the translational research bucket are available to these researchers. Renown and UNR Med are poised to provide potentially cutting-edge treatments with bench to bedside research. Expanding Clinical Trials Perhaps the most important outcome of the affiliation is access to novel treatments via clinical trials. In the coming years, Renown and UNR Med will work to expand their clinical trial portfolio in an effort to provide a clinical trial option for many diseases in addition to standard of care. This endeavor will allow patients to make an informed choice about their healthcare. With novel treatments available right here in Reno, people won’t have to travel to other research institutions for similar care. This eases a tremendous potential burden on patients and families alike navigating complex illnesses like cancer. The affiliation is exciting and provides many opportunities for clinicians (present and future) and the community. Renown's Clinical Research Office is thrilled to be a part of this historic time and are enthusiastic to communicate our successes and opportunities to the community. We sincerely look forward to contributing to the vision of “a healthy Nevada.”
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Take a Tour of the New Panda Cares Center at Renown Children's Hospital
Begin a new year on the traditional lunisolar Chinese calendar and help support Panda Express® locations - including the new Panda Cares® Center of Hope that has opened to serve pediatric patients and families throughout northern Nevada. This Lunar New Year, you can join local child, Emmalee Sutton, the Renown Health Foundation and Panda Express® through its philanthropic arm, Panda Cares® , to help children and their families receiving care at Renown Children’s Hospital. On Saturday, Feb. 20, community members can support Renown’s youngest patients by ordering online at a nearby Panda Express® location using code 902354. Renown Children’s Hospital will receive 28% of the proceeds from online orders placed with the code. Supporters may also visit the Panda Express Plumb Lane location in Reno on the same day, where they will donate 20% of in-person proceeds to Renown Children’s Hospital. (Please present this flyer at checkout.) Panda Express® guests and their associates in northern Nevada and northeastern California have raised nearly $500,000 for Renown Children’s Hospital since 2007. In 2020, more than $138,000 was raised for the Panda Cares® Center of Hope at Renown Children’s Specialty Center, which has opened at Renown Children’s Hospital within Renown Regional Medical Center at 1155 Mill St. in Reno, Nev. The Panda Cares® Center of Hope provides care to not only children, but also comprehensive support to the entire family. Similarly, it creates an environment that reduces stress, promotes healing, and provides a superior patient and family experience. “The Panda Cares® Center of Hope at Renown Children’s Hospital is special because it upholds Panda Express® ’ mission and values of being proactive, having respect for each other, learning and growing, and giving time and resources back to the community. The Center also supports each child’s well-being, including their physical, emotional, mental and spiritual needs,” says Tony Slonim, MD, DrPH, Renown’s President and CEO. “We are grateful for our partnership with the team at Panda Express® , who are as passionate as we are about children’s health, and helping us provide exceptional care for children.” “The Panda Cares® Center of Hope at Renown is the first-ever in northern Nevada, and we are excited to be able to provide the highest level of care for children and teenagers in northern Nevada who have chronic health conditions. Specifically, we offer ongoing treatment, health management, and age-appropriate specialty medical services including; pediatric nephrology, pediatric endocrinology, pediatric neurology, pediatric pulmonary, pediatric infectious diseases, medical genetics and adolescent medicine- all in one beautiful, new, convenient, family-friendly facility,” says Max Coppes, M.D., Ph. D., MBA, Nell J. Redfield Chair of Pediatrics at the University of Nevada School of Medicine and pediatrician-in-chief at Renown Children's Hospital. A Partnership for Health & Education of Underserved Youth “This partnership allows Renown Children’s Hospital to continue to strengthen regional services and increase Panda’s visibility within our growing community,” says Lawrence Duncan - VP & Administrator for Renown Women & Children’s Hospital & Administrator the Institute for Cancer. “Last year, 21,930 sick children received care from Renown Children’s Hospital. To date, Panda Express® has provided us significant financial support to assist us as a charitable, non-profit organization in providing health and healthcare to every child, regardless of illness, injury, insurance, or ability to pay.” “Renown Health Foundation appreciates Panda Cares® ’ generosity year after year, and the unwavering support of our community to make the Panda Cares® Center of Hope and Saturday’s fundraiser a success,” said Kiemmy Thai, MBA, Foundation Manager of the Children's Hospital at Renown. “Our hope is that you and your family can enjoy a nice meal from Panda Express® together, knowing your contribution makes it possible for pediatric champions like Emmalee to continue receiving the best care close to home.” The Panda Cares® Center of Hope has already helped hundreds of local pediatric patients and their families feel more comfortable and relaxed while being cared for in the hospital. Watch Renown Children’s Hospital and Children’s Miracle Network Hospitals’ newest Champion Child Ambassador, Emmalee Sutton, tour you through this new, fun and family-friendly health care environment. “We are very fortunate to have such generous partners like the people behind Panda Express® who want to help our patients and their families, as well as our pediatric care teams,” said Dr. Sonia Budhecha, pediatric pulmonologist at Renown Children’s Specialty Care Center. “This Center has helped many young patients, and their parents, feel more comfortable along their healing journey, contributing to an even more positive experience here at Renown Children’s Hospital.” For more opportunities to support pediatric patients in our area, please visit renown.childrensmiraclenetworkhospitals.org/. About Renown Children’s Hospital Renown Children’s Hospital is the only dedicated children’s hospital in northern Nevada, and offers a variety of programs and services designed specifically to care for the community's families. It has the region’s only Children’s ER and Pediatric ICU. Renown Children’s Hospital is the only hospital affiliated with Children’s Miracle Network Hospitals (CMNH) in the region and local CMN Hospitals' programs and events directly benefit children in the Truckee Meadows. It is also the only hospital in the region affiliated with CHA (Children’s Hospital Association). For more information, visit renown.org/children. About Panda Express® On a mission to inspire better lives, Panda Express, an American Chinese Trailblazer, is the largest Asian dining concept in the U.S. Family-owned and operated since 1983 by co-founders and co-CEOs Andrew and Peggy Cherng, Panda Express is best known for creating a wide variety of industry-first recipes, including its best seller the Original Orange Chicken® and award-winning Honey Walnut Shrimp, which have defined the category of authentic American Chinese cuisine. Each dish at Panda Express, including the Wok Smart® selections, is thoughtfully crafted with quality ingredients and inspired by bold Chinese flavors and culinary principles. The restaurant brand has more than 2,000 locations throughout the U.S. and has introduced American Chinese cuisine to more than ten international countries. Powered by this global family of associates, Panda Cares, the organization’s philanthropic arm, has raised more than $212 million and countless volunteer hours in bettering the health and education for over 12 million youths as well as supporting communities in need since 1999. For more information, visit pandaexpress.com, or find us on Facebook, Twitter or Instagram. About Children’s Miracle Network Hospitals Children’s Miracle Network Hospitals® raises funds and awareness for 170 member hospitals that provide 32 million treatments each year to kids across the U.S. and Canada. Donations stay local to fund critical treatments and healthcare services, pediatric medical equipment and charitable care. Since 1983, Children’s Miracle Network Hospitals has raised more than $7 billion, most of it $1 at a time through the charity's Miracle Balloon icon. Its various fundraising partners and programs support the nonprofit's mission to save and improve the lives of as many children as possible. Find out why children's hospitals need community support, and learn about your member hospital, at CMNHospitals.org and facebook.com/CMNHospitals.
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Local Artist Auction Benefits Stacie Mathewson Behavioral Health & Addiction Institute
The annual Art for Recovery event features artwork from 13 local artists inspired by the Stacie Mathewson Behavioral Health & Addiction Institute mission. Sales will benefit the Institute. Renown Health Foundation hosts Art for Recovery at the Stacie Mathewson Behavioral Health & Addiction Institute on Thursday, Sept. 23 from 4-7 p.m. The annual fundraising event is free, open to the public and benefits the Stacie Mathewson Behavioral Health & Addiction Institute at Renown, located at 85 Kirman Ave. in Reno, Nev. The family-friendly event features an art auction, live DJ, craft vendors, activities for kids and refreshments. Established in 2018, the Stacie Mathewson Behavioral Health & Addiction Institute at Renown focuses on expanding community access to prevention and intervention services for mental health disorders and alcohol and drug addiction, with the goal of decreasing stigma and encouraging more people to seek help. The annual Art for Recovery fundraiser features the artwork of 13 local artists who have created pieces inspired by the Institute's mission. Each work of art addresses themes of hope and resilience. “We look forward to continuing the tradition of celebrating local artists, supporting our healing programs and bringing awareness to addiction recovery during the annual Art for Recovery event. This event shows that not only are our providers here to help our patients get through life’s challenges, but our community is here to support, too,” said Steve Shell, vice president of the Stacie Mathewson Behavioral Health & Addiction Institute at Renown. Participating artists include Bryce Chisholm, Naomi Ferrall, Amy Lawrence, Jessamyn Parker, Emily Reid, Arthur Richmond, the Robison Family (Paula, Elsa, Rosemary and Nathan), Cooper Sandoval, Trisha Shepherd, Sam Sprague, Cat Stahl, Julie Steiner and Jim Tuxon. Read the inspiration behind every donated piece of art here. Local 12-year-old artist Cooper Sandoval is donating a work of art titled, ‘Time.’ Cooper shares that his inspiration comes from the hope of time. “No matter how bad of a day it is, I always know that things will get better with time,” said Cooper. Bidding for the highly anticipated art auction is now open and concludes Sept. 23 during the free outdoor event. Funds raised will support improved patient care services at the Institute. To view and bid on the art pieces, visit www.renown.org/artforrecovery. About Renown Health Renown Health is a locally governed, not-for-profit integrated healthcare network serving northern Nevada, Lake Tahoe and northeast California. Renown is one of the region’s largest private employers with a workforce of more than 7,000. It comprises three acute care hospitals, a rehabilitation hospital, the area’s most comprehensive medical group and urgent care network, and the region’s largest and only locally owned not-for-profit insurance company, Hometown Health. Renown has a long tradition and commitment to improve the care and the health of our community. For more information, visit renown.org.
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Study Shows Importance of Ensuring Participant and Provider Follow-up After a Genetic Screening Result
Released in partnership with the Desert Research Institute: New research from the Healthy Nevada Project® finds that a confirmed diagnosis does not always result in changes to patient care. Presenting individuals with potentially life-altering health information doesn’t mean the individuals – or their healthcare providers – will act on it. Follow-up education and conversations about actionable care plans with patients and their doctors are key next steps, according to new research from the Healthy Nevada Project. The Healthy Nevada Project is a genetic screening and research project that launched in 2016 as a partnership between DRI and Renown Health. The project now has more than 50,000 participants, with genetic sequencing provided by Helix. Between September 2018 and September 2020, the Healthy Nevada Project successfully notified 293 participants that they were genetically at risk for hereditary breast and ovarian cancer syndrome, Lynch syndrome, or familial hypercholesterolemia – three common genetic conditions known collectively as the Centers for Disease Control and Prevention (CDC) Tier 1 conditions. In a study published today in Frontiers in Genetics, Healthy Nevada Project scientists looked at the impact that notifying a patient of a positive finding for a CDC Tier 1 condition had on the care that the patient received in the months and years that followed. According to their results, among the 293 Healthy Nevada Project participants who were notified of their genetic risk of a CDC Tier 1 condition, 71 percent of participants with electronic health records shared their findings with healthcare providers. However, only 30 percent of the electronic health records for these patients contained documentation of the genetic diagnosis, and only 10 percent of examined patients experienced a possible change in care after receiving the results of their genetic screening. “The Healthy Nevada Project was implemented with a ‘hands-off’ approach where the participants receive their findings and decide with whom and when to share those findings. The findings were not automatically added to their electronic health records,” said Dr. Gai Elhanan, health data scientist at DRI and co-lead author of the study. “What we’re learning now is that to ensure that important genetic findings are integrated into the care journey it is important to make their inclusion into the electronic health records part of the study.” This study builds on previous Healthy Nevada Project research published in Nature Medicine demonstrating the importance of screening for CDC Tier 1 conditions, which affect about one in 75 individuals and can be mitigated or even prevented from developing into disease when detected early. This study found that as many as 90 percent of the CDC Tier 1 cases are missed by clinical providers during normal clinical care screenings and examinations. During the current study, the Healthy Nevada Project scientists found that 19 percent of studied participants had already developed one of the CDC Tier 1 conditions, and thus would have potentially benefited from earlier notification about their condition. The study team hopes that their findings will encourage individuals in Nevada to obtain genetic testing for these relatively common conditions. Even if individuals are older or have already suffered from diseases related to these conditions, testing could also prove beneficial to siblings, children, and grandchildren who may also be at risk and who could subsequently be screened in the event of a positive finding. The study team also encourages informing health care providers of the importance of incorporating genetic diagnoses into the pharmaceutical (for example, for Familial Hypercholesterolemia) and treatment advice given to patients. “As a result of this analysis, the clinicians at Renown Health and the Healthy Nevada Project researchers have made significant changes, including obtaining informed consent from participants to report positive findings from their genetics reports directly into their electronic medical record,” said Daniel Kiser, M.S., assistant research scientist of data science at DRI and co-lead author of the study. “This will help both participants, their clinical providers, and the whole state maximize the long-term benefits of the Healthy Nevada Project voluntary population-based genetic screening.” Additional information: The full text of the study, Incomplete Penetrance of Population-Based Genetic Screening Results in Electronic Health Record, is available from Frontiers in Genetics: https://www.frontiersin.org/articles/10.3389/fgene.2022.866169/full?&utm_source=Email_to_authors_&utm_medium=Email&utm_content=T1_11.5e1_author&utm_campaign=Email_publication&field=&journalName=Frontiers_in_Genetics&id=866169. This project was funded by Renown Health, the Renown Health Foundation, and the Nevada Governor’s Office of Economic Development. Study authors included Gai Elhanan (DRI), Daniel Kiser (DRI), Iva Neveux (DRI), Shaun Dabe (Renown Health), Alexander Bolze (Helix), William Metcalf (DRI), James Lu (Helix), and Joseph Grzymski (DRI/Renown Health). For more information on the Healthy Nevada Project® or to request genetic screening, please visit: https://healthynv.org/ About DRI The Desert Research Institute (DRI) is a recognized world leader in basic and applied environmental research. Committed to scientific excellence and integrity, DRI faculty, students who work alongside them, and staff have developed scientific knowledge and innovative technologies in research projects around the globe. Since 1959, DRI’s research has advanced scientific knowledge on topics ranging from humans’ impact on the environment to the environment’s impact on humans. DRI’s impactful science and inspiring solutions support Nevada’s diverse economy, provide science-based educational opportunities, and inform policymakers, business leaders, and community members. With campuses in Las Vegas and Reno, DRI serves as the non-profit research arm of the Nevada System of Higher Education. For more information, please visit www.dri.edu. About Renown Health Renown Health is the region’s largest, locally governed, not-for-profit integrated healthcare network serving Nevada, Lake Tahoe and northeast California. With a diverse workforce of more than 7,000 employees, Renown has fostered a longstanding culture of excellence, determination and innovation. The organization comprises a trauma center, two acute care hospitals, a children’s hospital, a rehabilitation hospital, a medical group and urgent care network, and the region’s largest, locally owned not-for-profit insurance company, Hometown Health. Renown is currently enrolling participants in the world’s largest community-based genetic population health study, the Healthy Nevada Project®. For more information, visit renown.org. About Helix Helix is the leading population genomics and viral surveillance company operating at the intersection of clinical care, research, and data analytics. Helix enables health systems, life sciences companies, payers, and government partners to accelerate the integration of genomic data into patient care and public health decision making. Learn more at www.helix.com.
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Gilead Sciences and Renown Institute for Health Innovation Announce Strategic Collaboration to Advance Understanding of Nonalcoholic Steatohepatitis (NASH)
Gilead Sciences, Inc. (Nasdaq: GILD) and the Renown Institute for Health Innovation (IHI) today announced a strategic collaboration to collect and analyze genetic and electronic health data that can enhance the understanding of nonalcoholic steatohepatitis (NASH) and potentially inform development of treatment options for the disease. Under the terms of the collaboration and license agreement, Gilead will provide funding to Renown IHI to sequence and analyze the DNA of 15,000 individuals living with NASH or nonalcoholic fatty liver disease (NAFLD) as well as a control cohort of 40,000 individuals in Nevada. “Combining the sequencing of protein coding DNA, with extensive electronic health record data will enable a deep analysis of the roles of genetics and environment in NASH incidence and progression,” said John McHutchison, AO, MD, Chief Scientific Officer and Head of Research and Development, Gilead Sciences. “The analysis of these large datasets in collaboration with Renown IHI could help identify genetic variants that impact the risk of developing NASH and thereby advance the discovery and development of new treatments for this disease.” Renown Health is Nevada’s most comprehensive and integrated healthcare network and maintains electronic health records for 1.02 million registered patients. In 2016, Renown Health and the Desert Research Institute established the Healthy Nevada Project (HNP), the nation’s first community-based population health study. In 2017 HNP began a partnership with Helix to leverage its population health services, Exome+™ sequencing, and consumer engagement tools. The HNP is now an ongoing collaboration between Renown IHI, the Desert Research Institute, a global leader in environmental data and applied research, and Helix, a personal genomics company. HNP combines genetic, environmental, social and clinical data to address individual and community health needs with the goal of improving health across the state and the nation. The HNP currently has 40,000 participants. “Combining genetic sequencing with large sets of data can play a critical role in understanding and identifying serious health risks, including diseases like NASH. We are excited to collaborate with Gilead to better understand the condition and its complexities,” said Anthony Slonim, MD., DrPH. “Any genetic variants identified in participants through the collaboration may be shared with the participants for patient care purposes.” About NASH Nonalcoholic steatohepatitis (NASH) is a chronic form of liver disease characterized by excess fat in the liver, inflammation, and liver cell damage. Inflammation and liver cell damage can cause scarring of the liver, or fibrosis, and ultimately lead to cirrhosis or liver cancer. NASH is more common in people with certain conditions, including obesity and type 2 diabetes. There are currently limited approved treatments for patients living with NASH. About Gilead Sciences Gilead Sciences, Inc. is a research-based biopharmaceutical company that discovers, develops and commercializes innovative medicines in areas of unmet medical need. The company strives to transform and simplify care for people with life-threatening illnesses around the world. Gilead has operations in more than 35 countries worldwide, with headquarters in Foster City, California. For more information on Gilead Sciences, please visit the company’s website at www.gilead.com. About Renown Health Renown Health is a locally governed and locally owned, not-for-profit integrated healthcare network serving Nevada, Lake Tahoe and northeast California. Renown is one of the region’s largest private employers with a workforce of more than 7,000. It comprises three acute care hospitals, a rehabilitation hospital, the area’s most comprehensive medical group and urgent care network, and the region’s largest and only locally owned not-for-profit insurance company, Hometown Health. Renown Health’s commitment has extended beyond traditional health care to include community health and well-being. Renown Health works to improve health care through science, research and genetics; forge community partnerships that improve lives and develop innovative models that are improving health care in Nevada. For more information, visit renown.org. About Helix Helix’s mission is to empower every person to improve their life through DNA. Helix is accelerating the integration of genomic data into clinical care and broadening the impact of large-scale population health programs by providing comprehensive expertise in DNA sequencing, bioinformatics, and individual engagement. Powered by their proprietary Exome+™ assay—a panel-grade exome enhanced by more than 300,000 informative non-coding regions—Helix offers health systems a scalable solution which enables the discovery of medically relevant, potentially life-saving, genetic information. Additionally, Helix offers a suite of DNA-powered products for continued individual engagement and discovery. Helix is headquartered in the San Francisco Bay Area and has one of the world’s largest CLIA-certified, CAP-accredited Next Generation Sequencing labs, located in San Diego, California. Learn more at www.helix.com. Helix, the Helix logo, and Exome+ are trademarks of Helix Opco, LLC. Gilead Forward-Looking Statement This press release includes forward-looking statements within the meaning of the Private Securities Litigation Reform Act of 1995 that are subject to risks, uncertainties and other factors, including the risk that the parties may not realize the potential benefits of this collaboration, and Gilead may fail to discover, develop and commercialize any product candidates for the treatment of NASH. All statements other than statements of historical fact are statements that could be deemed forward-looking statements. These risks, uncertainties and other factors could cause actual results to differ materially from those referred to in the forward-looking statements. The reader is cautioned not to rely on these forward-looking statements. These and other risks are described in detail in Gilead’s Quarterly Report on Form 10-Q for the quarter ended March 31, 2019, as filed with the U.S. Securities and Exchange Commission. All forward-looking statements are based on information currently available to Gilead, and Gilead assumes no obligation to update any such forward-looking statements. For more information on Gilead Sciences, please visit the company’s website at www.gilead.com, follow Gilead on Twitter (@GileadSciences) or call Gilead Public Affairs at 1-800-GILEAD-5 or 1-650-574-3000. Additional Media Contact: Sung Lee, Investors 650-524-7792 Arran Attridge, Media 650-425-8975
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Coming Together to Make a Difference: Teens Donate Over 1,300 Face Masks to Healthcare Heros
Three Los Angeles teens rallied their high school classmates to raise funds and donate more than 1,300 face masks for Renown Health employees. While many teens reflected on missed milestones like prom and graduation that didn’t happen as a result of the COVID-19 pandemic, three high school seniors from Los Angeles felt inspired to make a difference. Friends Jessica Gestetner, Amanda Rosenthal and Katherine Konvitz organized a fundraising campaign with their classmates and purchased over 1,300 face masks for staff at Renown Health. “My friends and I wanted to help our doctors and nurses because they are out saving lives while we are all fortunate enough to remain at home and healthy,” said Gestetner “We raised over $3,500 and spent it buying KN-95 masks for the heroes at Renown. This was our way of thanking all the healthcare workers for their selfless service.” Why did these LA teens choose Renown Health for this donation? Katherine Konvitz has a family friend who works at Renown, which is how the teens first learned about the organization’s call for community support to gather face masks and other personal protective equipment. Thanks to this significant donation, Renown exceeded its goal of securing 10,000 community-donated face masks to benefit employees working on the frontline to help keep the community safe. “I can only imagine how difficult these times are for our youth, as they’re unable to go to school, spend time with their friends and experience all the activities that are seen as a rite of passage to many,” said Tony Slonim, MD, D.Ph., president and CEO of Renown Health. “I applaud the incredible act of kindness displayed by Jessica, Amanda and Katherine to give back to our staff, despite the challenging circumstances. We are extremely fortunate to have the generosity and support of northern Nevadans and people across the country as we work to improve the health and well-being of the people and communities we serve.” Aside from their face mask contribution, Ms. Gestetner, Rosenthal and Konvitz also made a financial donation to Renown’s Healthcare Workers Greatest Needs fund, where donations are directed to address the highest needs our healthcare teams are currently facing as they continue to screen, diagnose and care for patients with respiratory illness, including COVID-19. For others interested in making a tax-deductible donation of Personal Protective Equipment, Meals, Financial Donations or Thank You notes, you can go to renown.org/donations-covid-19/ or contact Renown Health Foundation, 245 E Liberty St #400, Reno, NV 89501. Phone: (775) 982-5545 Renown continues to welcome donations of masks, gowns and surgical caps and appreciates the support of our community. Donations are accepted through the main entrance at the Tahoe Tower of Renown Regional Medical Center. Please let the security staff know you are dropping off donations for the mask donation drive and these items will be marked accordingly. All handcrafted masks, gowns and surgical caps are laundered and sanitized before distribution to appropriate areas. In addition to the personal protective equipment Renown has received during these unprecedented times, people have thanked care providers through hundreds of notes and cards, as well as numerous generous meal donations for frontline staff. These donations have a tremendous impact on Renown’s ability to continue to provide quality care in northern Nevada despite the challenges brought by the COVID-19 pandemic. About Renown Health Renown Health is a locally governed and locally owned, not-for-profit integrated healthcare network serving northern Nevada, Lake Tahoe and northeast California. Renown is one of the region’s largest private employers with a workforce of more than 7,000. It comprises three acute care hospitals, Renown Children’s Hospital, Renown Rehabilitation Hospital, the area’s most comprehensive medical group and urgent care network, and the region’s largest and only locally owned not-for-profit insurance company, Hometown Health. Renown has a long tradition and commitment to continually improve the care and the health of our community. For more information, visit renown.org.
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Healing Garden at Renown Expands Over 14,000 Square Feet
Expansion project celebrates the 10-year anniversary of Fianna’s Healing Garden; led by daughter Rebecca Dickson and brother Harvey Fennell. Renown Health Foundation announced today the re-opening of the newly renovated Fianna’s Healing Garden at Renown Regional Medical Center. Fianna Dickson Combs, a longtime Reno resident, business leader and master gardener, shared Renown’s belief in the healing power of nature. Fianna lost her battle to ovarian cancer in 2008 and her family and friends carried out her wishes after she passed away, opening the original healing garden in 2009 to benefit patients and caregivers. Today, the garden continues to grow – the expansion includes connected walking paths, fountain, benches and seating areas, additional sculptures and a grass area with a covered pavilion. Fianna’s Healing Garden is open to patients, their supporters and employees. Members of the media are invited to tour the garden on Monday, June 22 from 10 am – noon. Please bring a face mask and be prepared to receive a health screening upon entering. Donors and individuals from Renown Health Foundation will be available for interviews. Please call 775-691-7308 or email news@renown.org to RSVP by June 22 at 9:30 a.m. “For over a decade, our staff, patients and their loved ones have found peace and solace in spending time in Fianna’s Healing Garden,” said Tony Slonim, MD, D.Ph., president and CEO of Renown Health. “I’d like to express my sincere gratitude and thanks to all who played a role in the garden’s renovation, and those who bring such beauty to our campus. I hope everyone gets a chance to experience the garden’s healing effects, and with it, the beautiful legacy Fianna and her incredible family, continues today.” Key Features The expanded healing garden now spans 28,388 square feet and includes the following new features: More than 2,000 plants and trees Covered pavilion on the east side of the garden offers protection from the elements and can seat up to 75 people. Featured on the back wall of the pavilion is a stunning mural of Mt. Rose. Supported by the E. L. Wiegand Foundation 1,257 square feet of natural grass located in front of the pavilion, allowing garden guests a beautiful, relaxing spot to picnic. Supported by the Reno Aces Traditional rose garden featuring a variety of 20 different award-winning David Austin roses. Supported by the Fennell and Dickson families Weeping cherry tree dedicated to our healthcare heroes for their extraordinary efforts during the COVID-19 pandemic and to those in our community who lost their lives. Combs’ legacy is sustained through the work of her family, friends and community members. Fianna’s eldest daughter Rebecca Dickson and her brother, Harvey Fennell, played an important role in the expansion and helped lead the effort to generate over $800,000 in community support. Fianna’s other brother, Thomas M. Fennell, designed the garden’s new pavilion. Greg Walaitis, chief development officer of Renown Health Foundation said, “On behalf of Renown Health Foundation, we would like to thank Becca Dickson, Harvey and Nancy Fennell for all their hard work and leadership on this project. They knew Fianna’s vision and brought together the community support to make it a stunning reality. We thank them for their extraordinary gift of this Garden to help improve the health and wellness of patients, families and caregivers.” “It brings me great joy knowing my mother’s contribution to Renown has already made a difference in the lives of countless individuals in need of comfort and relief,” said Dickson. “The renovated garden has even more places to sit, reflect, walk, picnic, read or talk, all while embracing nature’s beauty. I can think of no better way to honor my mother’s legacy, and I’m incredibly grateful for the support of our friends and family to bring this project to life.” Ways to Support Fianna’s Healing Garden Make a gift at renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., O2, Reno, NV 89502 Venmo: @RenownFoundation Special Thanks Renown Health Foundation would like to thank the following organizations and individuals, for the garden expansion would be impossible without their support: E. L. Wiegand Foundation Reno Aces Harvey and Nancy Fennell Rebecca Dickson Thomas M. Fennell, Fennell-Purifoy Architects Estelle J. Kelsey Foundation Monroe/Schuler Foundation Thelma and Thomas Hart Foundation E.L. Cord Foundation Marie Crowley Foundation Jerry and Roxie Enneking Dr. David and Jennifer Smith David Geddes Victor Bucher Cary Lurie Renown Employees Architect: Dale Cox Architects Landscaping: Reno Green Landscaping Contractor & Builder: Clark/Sullivan Construction Sounds of Garden: Sierra Integrated Systems “My belief is that nature is the most healing element in our environment, it brings us to a more natural and comfortable place within ourselves” - Fianna Dickson Combs About Renown Health Renown Health is a locally governed and locally owned, not-for-profit integrated healthcare network serving northern Nevada, Lake Tahoe and northeast California. Renown is one of the region’s largest private employers with a workforce of more than 7,000. It comprises three acute care hospitals, Renown Children’s Hospital, Renown Rehabilitation Hospital, the area’s most comprehensive medical group and urgent care network, and the region’s largest and only locally owned not-for-profit insurance company, Hometown Health. Renown has a long tradition and commitment to continually improve the care and the health of our community. For more information, visit renown.org.
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